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<\/a><\/td>\nMother and daughter team up to fight bias and discrimination in treatment for people with sickle cell\u00a0disease<\/a><\/h2>\nby Kevin McCormack<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n\n![\"\"](\"https:\/\/ci6.googleusercontent.com\/proxy\/PWBOapXKfIVJrboNrbG_Cwrl889FDZSseEBMg9w33BjLYVkrM7l75vXXOVuhZXboKVEqG_sJ_CN3u1Q-VHXdEPeuRnw_wW-qJ4egyVscn_-rayK1ol936VHP_qxmQmpjHvEUYIPS8Zea8SM=s0-d-e1-ft#https:\/\/aholdencirm.files.wordpress.com\/2020\/11\/marissa-adrienne-close-smiling.jpg?w=560\")
<\/a><\/figure>\n“Adrienne Shapiro and Marissa Cors are a remarkable pair by any definition. The mother and daughter duo share a common bond, and a common goal. And they are determined not to let anyone stop them achieving that goal.<\/p>\n
“Marissa was born with sickle cell disease (SCD<\/a>) a life-threatening genetic condition where normally round, smooth red blood cells are instead shaped like sickles. These sickle cells are brittle and can clog up veins and arteries, blocking blood flow, damaging organs, and increasing the risk of strokes. It\u2019s a condition that affects approximately 100,000 Americans, most of them Black.<\/p>\n“Adrienne became a patient advocate, founding Axis Advocacy<\/a>, after watching Marissa get poor treatment in hospital Emergency Rooms. \u00a0Marissa often talks about the way she is treated like a drug-seeker simply because she knows what medications she needs to help control excruciating pain on her Sickle Cell Experience Live<\/a> events on Facebook.<\/p>\n“Now the two are determined to ensure that no one else has to endure that kind of treatment. They are both fierce patient advocates, vocal both online and in public. And we recently got a chance to sit down with them for our podcast, Talking \u2018Bout (re) Generation<\/a>. These ladies don\u2019t pull any punches.<\/p>\n“Enjoy the podcast.<\/a><\/p>\n“CIRM is funding four clinical trials<\/a> aimed at finding new treatments and even a cure for sickle cell disease.<\/p>\n<\/div>\n<\/div>\n<\/div>\n“Kevin McCormack<\/a><\/strong> | September 8, 2021 at 9:02 am | Tags: Adrienne Shapiro<\/a>, Axis Advocacy<\/a>, clinical trials<\/a>, Marissa Cors<\/a>, Podcast<\/a>, sickle cell anemia<\/a>, Sickle cell disease<\/a>, Talking ’bout (re)Generation<\/a>, The Sickle Cell Experience Live<\/a> | Categories: Blood stem cells<\/a>, California Institute for Regenerative Medicine<\/a>, CIRM funded research<\/a>, City of Hope<\/a>, Clinical Trials<\/a>, Diversity, Equity, Inclusion<\/a>, Gene editing<\/a>, Patient Advocacy<\/a>, Patient Advocate event<\/a>, Sickle cell disease<\/a>, Stem cell research<\/a>, Stem cells<\/a>, UC Los Angeles<\/a> | URL: https:\/\/wp.me\/p4BBpx-50X.”<\/a><\/div>\n","protected":false},"excerpt":{"rendered":"As posted to my facebook pages September 8, 2021, it is shared here” Mother and daughter team up to fight bias and discrimination in treatment for people with sickle cell\u00a0disease by Kevin McCormack “Adrienne Shapiro and Marissa Cors are a … Continue reading
<\/a><\/figure>\n“Adrienne Shapiro and Marissa Cors are a remarkable pair by any definition. The mother and daughter duo share a common bond, and a common goal. And they are determined not to let anyone stop them achieving that goal.<\/p>\n
“Marissa was born with sickle cell disease (SCD<\/a>) a life-threatening genetic condition where normally round, smooth red blood cells are instead shaped like sickles. These sickle cells are brittle and can clog up veins and arteries, blocking blood flow, damaging organs, and increasing the risk of strokes. It\u2019s a condition that affects approximately 100,000 Americans, most of them Black.<\/p>\n “Adrienne became a patient advocate, founding Axis Advocacy<\/a>, after watching Marissa get poor treatment in hospital Emergency Rooms. \u00a0Marissa often talks about the way she is treated like a drug-seeker simply because she knows what medications she needs to help control excruciating pain on her Sickle Cell Experience Live<\/a> events on Facebook.<\/p>\n “Now the two are determined to ensure that no one else has to endure that kind of treatment. They are both fierce patient advocates, vocal both online and in public. And we recently got a chance to sit down with them for our podcast, Talking \u2018Bout (re) Generation<\/a>. These ladies don\u2019t pull any punches.<\/p>\n “Enjoy the podcast.<\/a><\/p>\n “CIRM is funding four clinical trials<\/a> aimed at finding new treatments and even a cure for sickle cell disease.<\/p>\n<\/div>\n As posted to my facebook pages September 8, 2021, it is shared here” Mother and daughter team up to fight bias and discrimination in treatment for people with sickle cell\u00a0disease by Kevin McCormack “Adrienne Shapiro and Marissa Cors are a … Continue reading