Me and My Money…a child’s story of diabetes

M&M Cover 300 small

Copyrighted in 2012, Me & My Money…a child’s story of diabetes, took two years to write…

From birthing thoughts, jotting ideas, typing a manuscript, carrying a daily journal, contacting an illustrator,  building the manuscript, proofreading and editing again and again and again and…you get the idea…this dream came to fruition.  It had do be done.  There is no other book like it — as far as my research goes — that reflects, mimics, or encourages diabetic children, T1Ds.  The book is now available to the general public in paperback form.  Celebrate!!

Submitting to a marketable world with a targeted audience, networking, promoting, speaking, through the main character, Kali with her dog, Money, brings attention to the increase of diabetes in animals – up 300% this past decade!

Through the wonderful insightfulness of illustrator Amy Pichly-Meyer who is responsible for the clarity of expression with the cover design, along with all 37 colored  illustrations, this book was built for you.  I am thankful for her friendship and abilities.

Briefly, the main character, Kali, is presently a fourth grader.  She was diagnosed with diabetes at the age of two.  Her rapid growth with blooming and wizened independence results from learning how to take care of herself.  Wayne, a best friend, knows her very well and together they embark on adventures through Wayne’s hobby, their separate and shared responsibilities, mutual friends, and more.  But Kali cannot forget her special pack!  She must carry this with her everyday, everywhere.

This book, along with the recent publication of Me & My Money Too…a child’s story with diabetes, are tools to understanding this disease.  Minute-by-minute self-care is introduced and forthcoming in this illustrated, easy-to-read chapter book, 104 pages long, appropriate for 8 years olds and available at Amazon.com in paperback edition as well as Kindle e-readers.   Local bookstores carry copies as well as local libraries with requests.  Please enjoy the following Chapter excerpts…

Chapter 1, Book One

Due to keeping up with my chores, I occasionally have some change in my pocket.  That’s because my parents give me a weekly allowance that I can spend when I want.

“Make sure you spend wisely,’ Dad says.  I’m not quite sure what “spend wisely” means, but I think I do okay with what I have.  For instance, one of my friends from school, Wayne, asked me to go to the hobby store one Saturday afternoon.  Because it is school summer vacation time, we could go almost any time, depending on our parents.  However, Saturday’s are best.

Wayne and I go way back, to kindergarten.  He is the only red-head kid in our whole grammar school, never mind our fourth grade.  He’s a full blown carrot top with thick hair in wavy curls.  This makes him real easy to spot in a crowd.  The girls in our class like Wayne more than the boys do.  I think this is because he has good manners and is polite.  It is either that or his clear sky blue eyes that sparkle.  Even his eyelashes are orange, matching his hair.  Most girls I know like blue eyes.  I never thought about it much.  My eyes are dark brown to match my light brown and blonde streaky hair.

Wayne is a pale looking kid.  Most of the time, the only color on Wayne’s face is because of his tannish-brown colored freckles.  I swear, if he didn’t have freckles, he would be white as a ghost!  I tease him about that, pretending that I can’t see him sometimes.  We laugh.  He blushes all red and pink.  It’s funny to see.  Wayne is shorter than I am — for now.  He teases me about my long brown hair — so flat, so straight and thin.  “There’s nothing to your hair,” he tells me as he quickly flicks it in the air.  “You don’t even have to brush it.  Your hair just hangs there off your fat head,” he often tells me as if I need to be reminded. 

I think Wayne is jealous of my straight hair.  Brushing his hair is a struggle because it is very thick.  Mine is a lot easier because it is stick straight.  He hates when his mother brushes his hair because “she always pulls it out of my head,” he told me one time.  “And you have a chubby little pug-nose.  Not like my pointy one at all,” he compares.  “But you get a tan in the summer.  I don’t tan, I burn.  It’s awful,” he explains.  That is true.

One summer that I remember, his mother covered his face and arms with white suntan lotion so  he wouldn’t get burned while playing with me in my back yard.  He looked so funny.  That stuff made him smell like the beach.  I laughed at him.  He didn’t like that.  And after a while, the suntan lotion disappeared.  But we stayed friends.  He wears that stuff all the time.  Sure, I use it too, but when I forget to rub it on my skin, I don’t get too worried.

“I guess you look like your father,” I told him because I think he does.  “I look like my mother,” I said.  And that’s okay with me because my mother is beautiful.  My Dad’s okay looking — for a Dad.  Sometimes he has a moustache.  Mom told him to shave it off because it made her sneeze when they kiss.  Eeeuu!  Sneezing and kissing, yuck!

“Kali,” my mom called up the stairs.  “Wayne is on the phone for you.”

“Okay.  Thanks.  I’ll get it up here,” I told her.

“Hi Wayne.  Wassup?”

“Hey.  Can you come to the train store with me today or what?  I’m looking for a certain model train engine and I think the Viking Hobby Store will have it.”

Well, I have no particular interest in model trains, so I knew I wouldn’t buy anything but I would go along with him anyway.  This is a wise decision.  After all, he is my very best friend.  Very best friends do things for each other whether we need to or like to or not.  It was Saturday morning anyway.  Cleaning my room could wait until I got back.  I was thinking, planning.

“Mom, Dad, is it okay with you if I go to the hoppy store with Wayne today?  He thinks he found the perfect train engine for his set.  He wants me to go and help him check it out.”

“I don’t mind.  Is your room picked up?” Mom asked.

“Not all the way yet, Mom,” I replied.  “I can finish when I get back.  All I have to do is fold my clothes and put them away.  A load of my socks and some t-shirts are still in the dryer.”

“Well, all right.  Did you ask your father?” Mom wanted to know.  “And don’t forget to take a snack and some juice boxes with you.”

“I know.  I already have a pack of peanut butter nabs in my sack with some water.  I don’t know where Dad is.  I thought he was in the kitchen with you.  Maybe he’s in the garage.”

“Okay,” continued my mother.  “If you don’t see your father on your way out, I’ll tell him.  If you do, please remind him that we’re going shopping today.  Oh, are you and Wayne taking your bikes or walking?”

“I think we’ll walk.”  And out the back door I went.

Chapter 2

Wayne lives four houses away from me.  I took the short-cut over to his house through a wildflower field.  I often come here to pick my mother some flowers.  I like to pick flowers for her.  There are all kinds of wildflowers in this field: yellow ones, pink ones, purple ones with yellow centers.  I don’t know the names of these flowers, I just know they are pretty and Mom likes them.

After I met Wayne on the front porch of his house, we proceeded to walk to this particular ‘train store’ as he calls it.  It is really a hobby store that has lots of other things of interest besides trains.  I’ve been in there with one of my older cousins.  She was looking for some particular, special types of paint brushes made with camel’s hair.  I thought that was cool — paint brushes made out of a camel’s hair!  There are small glider planes in this store with hand-held motor devices; there are different kinds of wood burners and wood carving tools; there are even lots of different colored rubber fish bait things — lures.  I liked those because they are shiny, squishy, and they squiggle.  Things that would attract a fish — go figure!  Wayne had been going on about a certain model train engine he saw in here a while ago.  It took him weeks and weeks to save up his allowance money to buy it.

“Hey, before we walk too far, is your insulin pump filled up?” Wayne asked.  “I hope it doesn’t beep like crazy while we are out.  I would hate to have to leave early so you could fix it.”

“Yes, it’s fine.  I filled it up with insulin yesterday morning and changed the needle site.  We are good to go!”  I planned this on purpose.  I knew he would ask.  I am diabetic.  Wayne knows.  Among many other things, I do take care of myself and my diabetes.  I have to test my blood sugar levels many times each day.  Diabetes is a disease that causes me not to digest food properly.  Because of that, I wear an insulin pump.  I used to have to take insulin shots before I got the pump.  Having the pump is much easier.  An insulin pump squirts insulin into my body, automatically, a tiny bit at a time.  A “squirt” is maybe the size of a pencil tip or the size of a period at the end of a sentence.  My parents had to give me insulin shots before I learned to give them myself.  I still keep syringes handy, in case the pump breaks down for whatever reason.  This is called having “Plan B” which is important. 

Read more of Kali’s young life with diabetes in “Me & My Money…a child’s story of diabetes.”  Available at Amazon.com.

JOSLIN 50-YEAR MEDALIST GATHERING

Yes, an astounding 50-Year celebration with the few people that have lived courageously and successfully with diabetes.  By ‘few,’ I mean approximately 6,153 since 1970.  1970.  Phew.  That’s six thousand, one hundred and fifty three individual characters in 50 years.

Absolutely awesome!

Having been a recipient of this particular medal in 2010, I am glad to report that I have lived another 10 years with diabetes.  Let me tell you…it has not been easy.  Whew.  In order for me to receive a 75-year medal, self-discipline is a nurtured core value.

Without further ado, I leave you with the latest Joslin Medalist Newsletter, Spring 2019.  Enjoy!  A. K. Buckroth   #buckroth   Amazon.com   Facebook   LinkdIn  🙂

Senate Bill 138…Singer/Song Writer Brett Michaels…

TODAY! March 27, 2019… “#KNOWSURVIVETHRIVE…KNOW the facts, SURVIVE the impact, THRIVE live the life! THIS WEDNESDAY General Richard Roth will present #Senate Bill 138 at the State Capitol. #BretMichaels will be testifying as to why #SB138 is crucial in raising awareness and #educating the public through our #California school districts. Come show your support! March 27th at 9:00 a.m. in the John L. Burton Hearing Room (4203). We hope to see you there! Please share! Thank you. – Team Bret🤘🏻#Unbroken #SingerSongwriter JDRF

Read about it here:   http://leginfo.legislature.ca.gov/fac…/billTextClient.xhtml

Appropriate to post here: 10 Things teachers should know about having a student with Type One Diabetes http://www,GetDuabetesRight.org

An insulin pump isn’t a cure

It is hard to have diabetes,even when I have an insulin pump. My blood sugars will vary every day and there is no such thing as “control” with Type 1. Please be patient while I deal with low and high blood sugars.

I wear super cool gadgets that help keep me alive.

My insulin pump and/or continuous glucose monitor may look like the latest ipod or mobile phone – some alarms even sound like a ring tone. Please don’t take them away from me – you would be putting my health in danger.

Sometimes I need to eat in class I need to keep glucose tabs and snacks in my desk (or pockets) in case of emergency.

If go low, even a trip to the nurse’s office could be too risky without immediate fast acting sugar,  I may not be brave enough to speak up for myself.

I depend on you to put my health and well being first. It’s not always easy to speak up when I’m low or high and need to take care of diabetes. It helps to know you’re looking out for my best interests.

I need immediate attention when I tell you I feel low, I may also need your help. Please give me a snack or let me check my blood sugar immediately.

Don’t leave me alone or send me to the nurse’s office by myself. My body and brain won’t be functioning properly and I could make a wrong turn or collapse in the hallway. I also cannot finish a test or complete my work until I have treated my low.

When my blood sugar is high, I use the restroom frequently.

This will not change, no matter how old I get. Please be patient when I need to take multiple restroom breaks throughout the day. This typically means my blood sugar is high and my body is reacting normally to flush extra glucose.

When my blood sugar is high, I also need to drink more to help it go down.

Please don’t call me diabetic because I am defined by WHO I am, not by diabetes.

If I’m not listening well or following instructions, I may need to check my blood sugar.

Please don’t assume that my lack of obedience or cooperation has anything to do with my attitude.

If you notice I’m not paying attention or am acting odd, gently ask me to check my blood sugar.

Thank you for being patient with interruptions in class.

Checking blood sugar multiple times a day, adjusting insulin levels and treating lows or highs can be exhausting.

Your compassion during these interruptions will help make school easier for me so that I don’t feel like a burden to you or the class.

Some days are a roller coaster of highs and lows.

Days that include low and high blood sugars happen. And when they do, I may feel terrible. It’s similar to how you feel when you have the flu or have had too much alcohol.

#buckroth  🙂

 

Travelling with Diabetes…Important Facts

Do You or Your Travel Partner Suffer From Diabetes? Here’s What You Need to Know When Traveling Domestically

Diabetes currently affects 30.3 million Americans.  That’s nearly one in ten!

The odds that either you or someone you love suffers from diabetes are alarming.  It can be a difficult disease to handle, especially along your travels.  Whether you’re a diabetic with an ambitious bucket list or you’re traveling with a diabetic who needs your care, we’ll give you the need-to-know for your upcoming domestic travels.

Just like anything else, each situation is very different and should be handled on an individual basis.  Not all of these tips will apply to everyone with diabetes.  After all, there are different types of the condition:

  • Type 1
  • Type 2
  • Gestational

Here are some tips to exercise in preparation for and during your travels on how to manage diabetes.

Your diabetes shouldn’t control your urge to travel!

Travel With Confidence as a Diabetic

With finding cheap flights, reserving the best hotels, mapping out activities, and planning finances, it’s difficult enough to construct the perfect trip WITHOUT worrying about diabetes.  Managing your diabetes or your loved one’s diabetes can make it that much more overwhelming.  A few of my family members have diabetes, and we’ve learned to construct our vacation plans around meals.

But there are ways to quiet your stress and amplify your excitement for your adventure.

Preparing for Your Trip

One cardinal step you can take to prepare for your trip is to research pharmacies in the area you plan to visit.  That way you’re not scrambling for the best options during an emergency!

Gather Documentation

It’s true that we’re living in a non-paperwork era.  But nothing can ever replace a proper doctor’s note.

This is especially applicable to seniors and children traveling alone.  However, it can’t hurt to have a conversation with your doctor about any recommendations they would give for traveling with diabetes.  You might have questions such as:

  • Any vaccines you might need
  • If you should expect any unusual effects from your upcoming activities
  • If your insulin doses should be modified

Be sure to get the doctor’s appointment well ahead of time so there is no last-minute rush.  You should also have a written prescription on your person.  If you are carrying syringes and/or insulin, it is important to carry documentation that the medication is for you specifically.

Diabetes is considered a disability, so it is always a good idea to have documentation.  And to be doubly prepared, keep in mind airport policies & accessibility options around the country.  Here is a quick sample of airport wheelchair policies & accessibility options from a few of the busier airports in the United States:

Airport Accessible Restrooms Handicap Parking Wheelchair Service
Hartsfield-Jackson Atlanta International Airport (ATL) All restroom facilities are fully equipped for wheelchair access. Four sets of “Men/Women” restrooms are located on each concourse. One set is located at either end, and two sets are centrally located on each concourse. Two sets are in the Airport’s Domestic Terminal atrium, including one set in the arrival’s lobby. Additional restrooms are located at the International Terminal, with a set on both the departure and arrival levels. Unisex family restrooms for those traveling with an attendant are located throughout the Airport: Domestic terminal arrival’s lobby (2) T2, T4, T8 and T12 A6 and A27 B9, B23 and B27 C15, C18 and C37 D4 and D32 F4, F6, F9, F12 Concourse F mezzanine level, departure level and arrival level An adult changing table is located in the family bathroom at Concourse F departure level near French Meadow Cafe. Parking for passengers with disabilities is available in all Airport parking areas. Once you enter the parking lot, just follow the signs to the designated parking spaces, which are closest to the Airport’s terminals. Passengers with disabilities are encouraged to use the Airport “Park-Ride” facility, which offers convenient service to the domestic terminal. A free, wheelchair-accessible shuttle bus will pick up passengers at their vehicle and take them to curbside check-in. Vans taller than 8 feet should park in “Park-Ride” lots. Upon returning to Hartsfield-Jackson, “Park-Ride” customers are picked up at the ground transportation area. “Park-Ride” parking rates are $1 per hour and $9 per day. For additional information, contact ABM-Lanier-Hunt 24 hours a day at (404) 530-6725. Airline representatives are available to provide wheelchair assistance. To reserve a wheelchair, contact the airline directly before your scheduled flight. Passengers with limited English proficiency should contact their airline for language assistance. Due to partial closures on the North Terminal roadways, passengers who need wheelchair assistance for drop-off between 9 p.m. and 5 a.m. should contact their airline’s wheelchair company at least five minutes before arriving at the Airport. Prime Flight (Air Canada, Alaska, American, Contour, Spirit and Turkish) – 404-530-7049 Prospect (JetBlue, Southwest and United) – 404-209-0503
John F. Kennedy International Airport (JFK) Each terminal has at least one wheelchair accessible restroom. If you need assistance locating one, just ask at the information booth located on the Arrivals Level in any of the terminals. The terminals and parking lots at JFK are divided into five areas, each specified by a separate color. For your convenience, the parking lots nearest the terminal entrances have a limited number of spaces for travelers with disabilities. To park in the spaces, official license plates issued by a municipality or state of residence must be prominently displayed. Parking fees for these vehicles are equal to the lowest rate available at the airport. Contact your airline prior to travel for wheelchairs. If you’re traveling with a motorized wheelchair, please ask the airline when you purchase the ticket about their policies regarding battery-operated wheelchairs.
Los Angeles International Airport (LAX) Each terminal has at least one wheelchair accessible restroom. All parking facilities have designated handicap parking stalls. Requesting a Wheelchair To Request wheelchair service, it is recommended you contact your airline 72 hours in advance. Wheelchair service is provide free of charge by your airline. Tipping is not required for wheelchair service. Most individuals requesting wheelchair assistance are transported via wheelchair from ticketing to their aircraft. Airlines are required to provide curbside wheelchair service when requested. On your return flight, you should remind a flight attendant near the end of your flight, that you will need a wheelchair upon arrival. Curbside Each airline is responsible for providing wheelchairs for their customers with disabilities, from curbside drop-off to the aircraft. Contact your airline’s reservation desk a minimum of 72 hours prior to your flight to reserve wheelchair service. Wheelchair service is provided free of charge. Tipping is not required. From Parking Structure Airlines are not responsible for providing wheelchair service from parking structures to terminals.
Phoenix Sky Harbor International Airport (PHX) Each terminal has at least one family restroom with a private area to change clothing or disposable undergarments. Ask for directions at any information desk. Accessible parking is available in all garages closest to the elevators. In the East Economy lot, accessible parking is available north of the PHX Sky Train Station. In the West Economy Park & Walk, accessible parking is available at the east end closest to Terminal 2. If you need extra time at the curb, Airport staff on the curb may issue Special Needs permits. Over height or oversize parking is available in the uncovered economy parking areas and Oversized Vehicle parking area east of Terminal 4. Request a wheelchair when checking in and tell a flight attendant during the flight. If you are departing, you may request a wheelchair from a Sky Cap at the curb or from a Sky Cap or the airline on the ticketing level of the terminal. You can also request wheelchair service ahead of time when you book your tickets with your airline. Ask your airline about traveling with power chair batteries.
San Francisco International Airport (SFO) Companion Care Restrooms for travelers needing companion assistance are located in all terminals, pre-security and post-security. All airport parking facilities have convenient parking for vehicles displaying a: DP (Disabled Person) license plate DV (Disabled Veteran) license plate Disabled Parking placard The Domestic Garage has standard parking at all levels. Van accessible parking is available through ParkVALET on Level 4 Departures near Terminal 1, Boarding Area C. International Garages A and G have standard and van accessible parking at all levels. In Long-Term Parking, accessible parking spaces for standard and van accessible vehicles are located on the first (ground) floor. SFO’s Long-Term Parking shuttle buses are wheelchair accessible. Travelers requiring wheelchair assistance are encouraged to advise their airline of their needs when making flight arrangements. Upon arriving at the airport, travelers with wheelchair or other special requests should approach an airline representative for assistance. At Domestic Terminals 1, 2, and 3, airline staff can be approached at curbside and check-in areas. At the International Terminal, please proceed to your airline’s assigned counter or dial 1-6210 from specially marked phones at all terminal entry doors. Arrangements for assistance to and from other locations at SFO can be made with your airline.

Contact your airline customer service for further questions and assistance while traveling with someone with diabetes.

Bring a Schedule

As you are traveling, be sure to consider time zones.

Because we are all prone to some level of jet lag, this can significantly affect daily routines, including eating and time of insulin injections.  If you don’t establish a schedule, your travels can be railroaded quickly with the potential fluctuation of blood sugar levels.

Jet lag can foil your idea of a good time – especially if your rigid schedule as a diabetic is compromised

Pack Healthy Snacks

It’s vital to carry healthy snacks in case you or your travel buddy are running on low blood sugar.  We all practice irregular eating habits while we travel, whether it be indulging in unhealthy food, drinking more than normal, or not getting enough water.

Eating out at a diabetes-friendly establishment isn’t always cheap, so bring and use your favorite restaurant rewards card to get the best bang for your buck for food.  It’s a nice way to get a return for money you’d spend anyway.

You can also take control of your diet by packing your own food, including items you know are diabetes friendly, like:

  • Cheese and crackers
  • Apples and peanut butter
  • Hard boiled eggs
  • Trail mix
  • Beef sticks
  • Dried fruit
  • Yogurt

It’s good to mix a few non-perishables in there to ensure you’ve ALWAYS got sustenance in your back pocket.  This can be the difference between an enjoyable adventure or an unfortunate trip to the hospital.

Hitting the Road

Just as you go to the doctor’s for a check-up prior to a vacation, take your car for a check-up, too!

If you are planning to head out for a road trip, be sure to take your vehicle in for an inspection at least a week before you hit the highway.  If there’s something wrong with your vehicle, you are giving yourself a few buffer days between a potential problem and your vacation.

However, do consider renting a car.  Sometimes it makes sense to pay for a rental car and put the miles on a vehicle that’s not your own.  And if you do decide to rent a car, be sure to explore all of your options when it comes to using rewards cards for car rentals.  Along with that, be sure to use cards that will give you the biggest return on gas purchases.

If you’ve got room, consider bringing extra medical supplies and snacks.  If you’re making a long drive through parts of the country where medical access isn’t readily available, you’re obviously going to want as many fallback solutions as you can get.  Bring enough food to account for low blood sugar, and pack a cooler for insulin in case you are traveling through high temperatures (not directly on ice, though!).

Lastly, driving can be extremely tiring.  Whether you are driving or not, being cooped up a car for hours on end is taxing.  Taking frequent breaks will allow everyone to stretch to keep blood flow moving and prevent fatigue.

Traveling by Air

While traveling by air is a bit more luxurious, it can still be hard on your body.

Notify the Proper People

If you decide that flying is your best mode of travel, be sure to let the appropriate people know (for example, your flight attendant while you’re boarding the plane).  That way they’ll understand when you press the call button and request a cup of juice to stave off hypoglycemia.

This is particularly wise if you’re traveling alone.

In the same vein, you can even use a TSA notification card that will make your airport security process a little less of a headache.

Store Your Medication in Your Carry-On Bag

Also, consider bringing medical necessities in your carry-on bag instead of putting them into your checked bag.  Do this for a few reasons:

  • You always want access to your medication.  If you end up stuck on the plane longer than you anticipated, or if onboard meals are delayed for some reason, it could lead to a bad situation if your supplies are in your checked bag
  • You don’t want to subject your insulin to frigid temperatures in the cargo hold
  • Checked bags get lost, misdirected, stolen, etc.

In fact, because airlines allow you 1 personal item (separate from your carry-on), you may want to bring a dedicated diabetes pouch filled with snacks, insulin, and tablets.

Personal items are considerably smaller than carry-on bags, but you can still cram plenty of necessities in there!

And don’t scrimp on the amount of snacks and medicine – bring WAY more than you imagine you’ll need!  Remember, diabetics don’t have to abide by the 3.4-ounces-of-liquids rule like everyone else when going through airport security.

Use Airport Lounges to Stay Comfortable

To keep your comfort levels up, consider entering airport lounges to rest up and have access to snacks and drinks before your flight.  This is my all-time favorite travel accessory.

Airport lounge access isn’t as expensive as you might imagine, especially if you have the right credit card!  If you are anticipating a long flight, it could make a world of difference.  Many lounges have hot meals, free beverages, high-speed Wi-Fi, private bathrooms, and even showers!

Bottom Line

Just like anything else in life, preparation is key to ensure a smooth and enjoyable experience.  If you or someone you are traveling with is diabetic, taking steps ahead of time could save you from a potentially health-threatening situation.

Diabetes shouldn’t stop you from seeing the world!  See: www.diabetesforecast.org for details.

 

Something You Need to Know: 24 Hour Insulin vs Fast-Acting Insulin

The last 25 years of my life, I have had to use a BASAL/24 Hour Long Acting Insulin along with a before Meal-Time/Fast Acting Insulin.  This is most, but not inherently, due to wearing an insulin pump.

The 35 years before that, I used syringes twice a day.  I am dependent on insulin.  I am an insulin addict.

The following guide and charts will be of good use to you, the T1D and or T2Ds in need of insulin.

Please use this with your doctor(s).

 

Skyrocketing Insulin Prices by Ashley Klann

Posted on facebook February 15, 2019, “Judge Denies Insulin Makers’ Motion to Dismiss Class-Action Lawsuit Regarding Skyrocketing Insulin Prices,” this article is definitely worthy here at Buckroth’s Blog.

“Attorney representing individuals living with diabetes against the pharma defendants says judge’s opinion “blows the insulin racket wide open” to expose deals with PBMs.”

“NEWARK, N.J. Today, a federal judge’s opinion has greenlighted a national class-action lawsuit filed against Sanofi, Novo Nordisk and Eli Lilly for their systematic overpricing of insulin and concealment of a behind-the-scenes arrangement orchestrated to hike insulin prices, according to attorneys at Hagens Berman.

“Hon. Brian R. Martinotti, U.S. District Judge for the District of New Jersey granted in part and denied in part the drug companies’ motion to dismiss the case. The opinion allows state law claims from plaintiffs – people living with diabetes who Eli Lilly, Sanofi and Novo Nordisk have forced to pay skyrocketing insulin prices – and gave attorneys representing them ability to address concerns regarding individual state representation. To the extent the court requires a patient from each state, attorneys say they can and will add clients to satisfy the court’s concerns.

F”ind out more about the lawsuit and sign up.

Regarding the plaintiffs’ state claims, Judge Martinotti’s opinion read, “This Court finds Plaintiffs have adequately alleged fraudulent, unfair, or unconscionable conduct.” The court also held that the plaintiffs “adequately pled an ascertainable loss.”

“The lawsuit states that in recent years, Sanofi, Novo Nordisk and Eli Lilly have raised the sticker or “benchmark” prices on their drugs by more than 150 percent. Some plaintiffs now pay almost $900 dollars per month just to obtain the drugs they need, according to the firm.

“Hagens Berman filed the first-of-its-kind lawsuit in 2017, detailing several accounts from patients resorting to extreme measures to survive rising insulin prices, including starving themselves to control their blood sugars, under-dosing their insulin, and taking expired insulin. The complaint also detailed how class members having intentionally allowed themselves to slip into diabetic ketoacidosis – a potentially fatal blood syndrome caused by lack of insulin in the body – so that they can obtain insulin samples from hospital emergency rooms.

“Steve Berman, managing partner and co-founder of Hagens Berman, was named co-lead counsel in the case by Judge Martinotti.

“In general we are pleased with the decision because we can now bring consumer protection claims in most states,” Berman said. “This ruling also clears the way for us to begin obtaining discovery from the manufacturers and PBMs so we can shine the light on exactly what has driven insulin prices sky high.”

“This ruling blows the insulin racket wide open,” he added.

“The complaint states that this once affordable drug is now out of reach for many patients due to a behind-the-scenes quid pro quo arrangement between drug makers and pharmacy benefit managers (PBMs): “increased benchmark prices are the result of a scheme and enterprise among each defendant and several bulk drug distributors. In this scheme, the defendant drug companies set two different prices for their insulin treatments: a publicly-reported, benchmark price and a lower, real price that they offer to certain bulk drug distributors.”

“Are you Affected? Sign up for the Case Now.

  • Attorneys are currently looking for those who purchased Lantus, Levemir, Novolog, Humalog Apidra, and/or Toujeo from the following states: Alaska, Alabama, Connecticut, Delaware, Hawaii, New Hampshire, North Carolina, North Dakota, Oklahoma, Rhode Island, South Carolina, South Dakota, Virginia, West Virginia or Wyoming. Sign up here.
  • Did you purchase Humalog in Arkansas, Illinois, Kentucky, Mississippi, New Mexico, Oregon, Tennessee or Vermont? Sign up here.
  • Did you purchase Novolog or Levemir in Colorado, Montana, Nevada, or Washington? Sign up here.
  • Did you purchase Lantus, Apidra or Toujeo in Louisiana, Maine, Mississippi, Tennessee or Washington? Sign up here.

About Hagens Berman Hagens Berman Sobol Shapiro LLP is a consumer-rights class-action law firm with 10 offices across the country. The firm’s tenacious drive for plaintiffs’ rights has earned it numerous national accolades, awards and titles of “Most Feared Plaintiff’s Firm,” and MVPs and Trailblazers of class-action law. More about the law firm and its successes can be found at www.hbsslaw.com. Follow the firm for updates and news at @ClassActionLaw.”

Media Contact: Ashley Klann, ashleyk@hbsslaw.com, 206-268-9363

Books: “My Diabetic Soul – An Autobiography” versus “My Diabetic Soul – An Autobiography Revised Edition”

Let me explain….

My Diabetic Soul – An Autobiography copyright 2010, remains a good read for those of you that have a copy.  As it was originally published through an Indie Publisher, typos in this original version had not been addressed – until now.

Only available for sale as an audio version, read by the author, your quick download via Audible.com is efficient.

My Diabetic Soul – An Autobiography Revised Edition copyright 2018, has taken its place.  Its plot and setting are not too different from the original.  However, this book holds recent updates with diabetes care, has a delightfully useful Index along with Internet Reference Resources from research.   This latest version not only has a bright, colorful title cover, it is crisper to read with available and comfortable inner space.  It has been profesisonally copyedited and proofread.  Shorter Chapters with new Titles increase clarity and voice through the story.   It is also proudly included in the Library of Congress under #2018961888.

After numerous months of efforts, it is available through Amazon.com in paperback and e-book formats.  The Nook by Barnes & Noble carries the e-book format, of course.

ISBN- 13; 9781492839682  and ISBN- 10; 149283968X; it is 324 pages, 45 Chapters, with photos.

I just wanted to let you know.

Best regards,

A. K. Buckroth (#buckroth)

 

 

“How Much Does It Cost To Produce Insulin?” Written by Dana Howe

“Half of the estimated 100 million people worldwide who need insulin do not have reliable, affordable access to the medication that keeps them alive. The three largest manufacturers of insulin — Eli Lilly, Novo Nordisk, and Sanofi — control 96% of the global market volume. Right now, there is no competitive biosimilar market to drive prices down. The lack of competition has resulted in price increases, intensifying the life-threatening issue of access to insulin both in the United States and abroad.

“So how much does it actually cost to produce insulin? And if a truly competitive market existed, how much could insulin cost per person?

“Researchers from Imperial College London, the Harvard TH Chan School of Public Health, and Liverpool University set out to answer these questions with support from the ACCISS study, aiming to improve access to insulin globally. A recent study estimated the price tag associated with creating regular human insulin, analog insulin and their biosimilars.

“What is a biosimilar?

“Biosimilars are insulins designed to work similarly to an insulin product that already exists and has previously been licensed. This allows for lower costs of research and development, streamlined governmental and regulatory approvals, and ideally lower costs for the product.

“Few biosimilar insulin products have come to market in the United States. In some instances, current insulin manufacturers have taken active steps to prevent new biosimilars from coming to market. For more on this, read “Where are all the generic insulins hiding?”.

“What is a “reasonable” price for insulin?

“With an active, competitive biosimilar market, this study estimated a reasonable price for analog insulins to be between $78-130 USD per person per year (except insulin Detemir, which was higher). Regular and NPH was even lower — between $48-72 USD per year. Yearly costs are based on an average dosage of 40 units per day (a World Health Organization statistic).

“The numbers proposed take into account not only manufacturing costs, but many of the other variables involved in production including the cost of active pharmaceutical ingredients, cost of other ingredients, cost of vials, cost of transportation, operating expenses and the added cost of bringing a new biosimilar to market. These numbers are “competitive but profitable” to manufacturers based on experts’ analysis.

“This study makes suggestions in the context of government procurement of insulin directly from an insulin manufacturer. The numbers should be interpreted as a price point for what a government might expect to pay per person per year if they were negotiating a dollar amount directly with an insulin biosimilar manufacturer.

“Why am I paying so much more than $130 per year for my insulin?

“Right now, there is no competitive biosimilar insulin market. Not just in the United States – anywhere in the world. This study sites the insulin oligopoly, regulatory challenges and regular incremental developments in insulin as three reasons we haven’t seen the emergence of a healthy biosimilar market. In order for the low prices suggested here to become a reality, multiple new manufacturing competitors need to enter the ring.

“Not only are the big three insulin manufacturers financially opposed to biosimilars entering the market, they’ve actively taken legal steps to prevent it. In July 2017, Merck received FDA approval for Lusduna Nexvue, a biosimilar of Lantus. It has not launched in the United States because of an outstanding lawsuit — Sanofi, maker of Lantus, sued Merck for patent infringement. Just this month, Merck announced that Lusduna will not come to market because of the cost associated with getting it there.

“The answer to why you’re paying so much for insulin depends on where you live, what kind of insurance you have, and a slew of other variables. The study’s authors remind us: “final prices to patients or health systems may include additional mark-ups added during the supply chain. These mark-ups will vary between countries, as they may be subject to local negotiations, regulations, and other factors. In some cases, these additional markups can be very large.”

“The United States is one such case. For the majority of Americans, the insulin prices we see are not negotiated by the government but by a long list of supply-chain players. Private insurance companies, pharmacies, and pharmacy benefit managers all have a hand in negotiations that impact the list price of insulin set by the manufacturer.

“The $1200 price tag a patient in the United States might see for a month’s worth of insulin reflects the total of money exchanged throughout the supply chain. Exactly how much profit each cog in the insulin-pricing machine rakes in is unclear. Between insulin manufacturers and customers, insulin passes through wholesalers, pharmacy benefit managers (PBMs), pharmacies, and insurance companies. The lack of transparency at every level makes it nearly impossible to understand the scope of the problem. Read more about the insulin-pricing machine here.

“Rising costs are taking a more serious toll than ever because patients are increasingly paying the entirety of the massive price tag out of pocket every month. Health insurance plan design has changed — more people are being forced to pay full prices for the first several months of the year after switching to a high-deductible plan. That is, of course, if they are lucky enough to be insured at all.

“These numbers put in sharp relief the remaining work there is to be done in insulin access globally. Less than $130 per person per year for modern insulin analogs represents an aspirational goal for a more affordable future. A future where no one dies because of a lack of access to insulin, with a competitive market made up of more than just three manufacturers, and where government regulation helps set affordable prices for insulin that everyone has access to.”

Obsessive Comparison Disorder by Madeleine Kando

Jan 14, 2019, 8:45 PM (3 days ago)

The eye doctor looked at my chart, then looked at me. My right eye was bloodshot, red as red can be. Like a vampire’s eyes. She placed the chart on the desk and said: ‘Your chart says that you are 75, is that true?’ 

‘Of course not’ I was tempted to reply. ‘I only wrote that so I would get preferential treatment. People give up their seat in the waiting room, open doors for you and don’t strike up annoying conversations, thinking that you are gaga anyway.’ Instead, I said: ‘Yes I am 75’.

You look great for your age’ the doctor said, as she told me to put my chin on the chinrest and peered into my bloodshot eye through the retinal camera. As I was trying to avoid eye contact with someone whose face is a few inches away, I wondered if she looked good for her age. I had no access to her chart, but if she was 50, she looked terrific; if she was 40, she wasn’t too bad looking, but if she was 35, she looked downright awful.

I wondered on what facts she based her statement about my looks. How is one supposed to look at my age? She was a pediatric doctor to whom I had been assigned on an emergency basis, so her judgment could not be based on comparing me with her other patients, who ranged between 2 and 7 year olds.

I couldn’t let it go. Sitting in my car after the appointment, I googled: ‘How is one supposed to look at 75’. Did you notice that Google never admits to not having an answer to anything? It didn’t say: ‘Sorry Madeleine, I do not know what a woman is supposed to look like at age 75’. Instead, it offered me numerous images of wrinkled, grey haired faces – faces of women I didn’t want to look like at any age.

My usually chaotic mind led me down a stream of consciousness path, and I started to wonder if we could know anything about anything without comparisons. How do I know I am a human? Without other humans around, I could be a cat walking on its hind legs, or a worm with 4 appendages. Would I know I am alive without all the dead people buried in the cemeteries? Ok, so I admit that comparisons serve a useful purpose. Without it, the world would be one big bowl of blended pea soup.

But you see, we have come to a point in our evolution where comparisons are running amuck. We, as a species, suffer from what some have dubbed ‘Obsessive Comparison Disorder’ (OCD), especially Millennials. It must be exhausting to have to adjust your self-image, not knowing who your are without a day to day, hour by hour, minute by minute comparison to your peers via Facebook and Instagram.

There was a moment in our evolutionary history called the ‘Ediacaran period’ (about 635 million years ago), when living beings spent their blissful lives as stationary and motionless creatures, anchored to the ocean floor. All they had to do was gently sway in the current, wait for something edible to float by and feed on it. They peacefully minded their own business, ignoring other stationary creatures, in a Zen like trance. Scientists actually call this evolutionary period ‘the secret Garden of Ediacara’. Comparing themselves to other Ediacarans was the furthest thing from their minds.

As professor of philosophy and deep sea diver Peter Godfrey-Smith explains in his book Other Minds: the Octopus, the Sea, and the Deep Origins of Consciousness: ‘Ediacarans’ lives seem not to have been lives of conflict and complicated interactions. It was a garden of relatively self-contained and self-possessed beings. Macarons that pass in the night.’ But good things never last, so after this heavenly period in the distant past of life on earth, nature came up with the bright idea of giving living beings the ability to move about. That was the beginning of our troubles. Once you go down that path, you are bound to meet other things that move and if you don’t want to end up as someone else’s lunch, you have to equip yourself with all sorts of claws, pincers and poisonous stingers.

You have to develop a tail and fins so you can flee and a nervous system that can process and react to what’s out there, and the whole dance starts to revolve around the relationship between you and the world. Gone are the good old Ediacaran days of navel staring, when all you needed to worry about was find a nice spot on the ocean floor and anchor yourself there for the rest of your life.

But even that wasn’t enough for busy mother nature. She insisted that some living beings, at a critical point in their evolution, should become self-aware. Once we were able to anticipate other creatures’ (usually evil) intentions, to read their mind so to speak, we turned this ability around and employed it to our own mind. Self-awareness was born.

Self-awareness is usually viewed as a positive trait, but why do we need to know that we know, instead of just knowing? Isn’t it enough to feel, without feeling about the fact that we are feeling? Did it give us an evolutionary advantage? Does my cat Emmy, know that she knows? She certainly knows a lot, but I don’t know if she bothers knowing that she knows. It does not serve any purpose in her life.

So, considering the current downsides to self-awareness, awareness of how much better off your peers are, how good or terrible you look for a 75 year old, our ability for self-awareness might be more harmful than beneficial.

I read that Obsessive Comparison Disorder diminishes with age. Soon, there will only be centenarians I can be compared to, and eventually I will be dead. That will be the end of my comparison troubles. Although, someone is bound to visit me in my coffin and say: ‘She really looks good for a corpse’.

Rush Introduces Insulin Access For All Bill

Jan 9, 2019
Press Release
WASHINGTON —Today, U.S. Representative Bobby L. Rush (D-Ill.) introduced H.R.366, the Insulin Access for All Act of 2019.  This bill, cosponsored by 33 members of the House Democratic Caucus, eliminates the cost sharing requirement under Medicare and Medicaid for insulin.
“This bill, introduced with significant cosponsors, addresses the appalling issue plaguing Americans who have one of the most devastating and debilitating diseases of modern times — diabetes.   There are many who simply cannot afford the insulin they need to live longer, active, and productive lives.  This legislation tackles that issue head on and ensures that those suffering from diabetes no longer have to pay out-of-pocket costs for insulin.  No American should go without life-sustaining medication,” said Rush.
This legislation was inspired by countless stories like that of Alec Raeshawn Smith, age 26, who died because he was forced to ration his insulin after he aged out of his parents’ insurance coverage.  Stories like this are further proof that we must do something to lower prescription drug costs.  “I am pleased to see that House Democrats’ agenda includes work on this vital and life-saving issue for the people,” said Rush.
A study by The Lancet Diabetes & Endocrinology journal predicts that by 2030, 79 million adults with type 2 diabetes are expected to need insulin to manage their condition and if current levels of access remain, only half of them will be able to be able to get an adequate supply.
Members cosponsoring this legislation include Representatives Alma Adams (N.C.), Karen Bass (Calif.), Joyce Beatty (Ohio), Sanford D. Bishop Jr. (Ga.), Anthony Brown (Md.), G.K. Butterfield (N.C.), André Carson (Ind.), Yvette D. Clarke (N.Y.), William “Lacy” Clay Jr. (Mo.), James E. Clyburn (S.C.), Danny K. Davis (Ill.), Val Demings (Fla.), Dwight Evans (Pa.), Marcia L. Fudge (Ohio), Steven Horsford (Nev.), Sheila Jackson Lee (Texas), Henry C. “Hank” Johnson Jr. (Ga.), Robin Kelly (Ill.), Al Lawson (Fla.), Barbara Lee (Calif.), John Lewis (Ga.), A. Donald McEachin (Va.), Donald Payne Jr. (N.J.), Stacey Plaskett (Virgin Islands), Ayanna Pressley (Mass.), Cedric Richmond (La.), Jan Schakowsky (Ill.), David Scott (Ga.), Robert C. “Bobby” Scott (Va.), Terri A. Sewell (Ala.), Bennie G. Thompson (Miss.), Bonnie Watson Coleman (N.J.), Frederica Wilson (Fla.)

Why English is so hard to learn by Marlene Cavis

“You think English is easy?  Check out the following:

  1. “The bandage was wound around the wound.
  2. “The farm was cultivated to produce produce.
  3. The dump was so full that the workers had to refuse more refuse.
  4. “We must polish the Polish furniture shown at the store.
  5. “He could lead if he could get the lead out.
  6. “The soldier decided to desert his tasty dessert in the desert.
  7. “Since there is not time like the present, he thought it was time to present the present to his girlfriend.
  8. “A bass was painted on the head of the bass drum.
  9. “When shot at, the dove dove into the bushes.
  10. “I did not object to the object which he showed me.
  11. “The insurance was invalid for the invalid in his hospital bed.
  12. “There was a row among the oarsmen about who would row.
  13. “They were too close to the door to close it.
  14. “The buck does many things when the does (females) are present.
  15. “A seamstress and a sewer fell down into a sewer line.
  16. “To help with planting, the farmer taught his sow to sow.
  17. “The wind was too strong to wind the sail around the mast.
  18. “Upon seeing the tear in her painting, she shed a tear.
  19. “I had to subject the subject to a series of tests.
  20. “How can I intimate this to my most intimate friend.

Heteronyms

“These are brilliant.  Homonyms or homographs are words of like spelling, but with mote than meaning and sound.  When pronounced differently, they are know as herteronyms.”

Found on the facebook page of English Professor June Gillam (JuneGillam.com), I needed to share this with you.  Consider this a lesson for today!

Sincerely, A. K. Buckroth