Me and My Money…a child’s story of diabetes

M&M Cover 300 small

Copyrighted in 2012, Me & My Money…a child’s story of diabetes, took two years to write…

From birthing thoughts, jotting ideas, typing a manuscript, carrying a daily journal, contacting an illustrator,  building the manuscript, proofreading and editing again and again and again and…you get the idea…this dream came to fruition.  It had do be done.  There is no other book like it — as far as my research goes — that reflects, mimics, or encourages diabetic children, T1Ds.  The book is now available to the general public in paperback form.  Celebrate!!

Submitting to a marketable world with a targeted audience, networking, promoting, speaking, through the main character, Kali with her dog, Money, brings attention to the increase of diabetes in animals – up 300% this past decade!

Through the wonderful insightfulness of illustrator Amy Pichly-Meyer who is responsible for the clarity of expression with the cover design, along with all 37 colored  illustrations, this book was built for you.  I am thankful for her friendship and abilities.

Briefly, the main character, Kali, is presently a fourth grader.  She was diagnosed with diabetes at the age of two.  Her rapid growth with blooming and wizened independence results from learning how to take care of herself.  Wayne, a best friend, knows her very well and together they embark on adventures through Wayne’s hobby, their separate and shared responsibilities, mutual friends, and more.  But Kali cannot forget her special pack!  She must carry this with her everyday, everywhere.

This book, along with the recent publication of Me & My Money Too…a child’s story with diabetes, are tools to understanding this disease.  Minute-by-minute self-care is introduced and forthcoming in this illustrated, easy-to-read chapter book, 104 pages long, appropriate for 8 years olds and available at Amazon.com in paperback edition as well as Kindle e-readers.   Local bookstores carry copies as well as local libraries with requests.  Please enjoy the following Chapter excerpts…

Chapter 1, Book One

Due to keeping up with my chores, I occasionally have some change in my pocket.  That’s because my parents give me a weekly allowance that I can spend when I want.

“Make sure you spend wisely,’ Dad says.  I’m not quite sure what “spend wisely” means, but I think I do okay with what I have.  For instance, one of my friends from school, Wayne, asked me to go to the hobby store one Saturday afternoon.  Because it is school summer vacation time, we could go almost any time, depending on our parents.  However, Saturday’s are best.

Wayne and I go way back, to kindergarten.  He is the only red-head kid in our whole grammar school, never mind our fourth grade.  He’s a full blown carrot top with thick hair in wavy curls.  This makes him real easy to spot in a crowd.  The girls in our class like Wayne more than the boys do.  I think this is because he has good manners and is polite.  It is either that or his clear sky blue eyes that sparkle.  Even his eyelashes are orange, matching his hair.  Most girls I know like blue eyes.  I never thought about it much.  My eyes are dark brown to match my light brown and blonde streaky hair.

Wayne is a pale looking kid.  Most of the time, the only color on Wayne’s face is because of his tannish-brown colored freckles.  I swear, if he didn’t have freckles, he would be white as a ghost!  I tease him about that, pretending that I can’t see him sometimes.  We laugh.  He blushes all red and pink.  It’s funny to see.  Wayne is shorter than I am — for now.  He teases me about my long brown hair — so flat, so straight and thin.  “There’s nothing to your hair,” he tells me as he quickly flicks it in the air.  “You don’t even have to brush it.  Your hair just hangs there off your fat head,” he often tells me as if I need to be reminded. 

I think Wayne is jealous of my straight hair.  Brushing his hair is a struggle because it is very thick.  Mine is a lot easier because it is stick straight.  He hates when his mother brushes his hair because “she always pulls it out of my head,” he told me one time.  “And you have a chubby little pug-nose.  Not like my pointy one at all,” he compares.  “But you get a tan in the summer.  I don’t tan, I burn.  It’s awful,” he explains.  That is true.

One summer that I remember, his mother covered his face and arms with white suntan lotion so  he wouldn’t get burned while playing with me in my back yard.  He looked so funny.  That stuff made him smell like the beach.  I laughed at him.  He didn’t like that.  And after a while, the suntan lotion disappeared.  But we stayed friends.  He wears that stuff all the time.  Sure, I use it too, but when I forget to rub it on my skin, I don’t get too worried.

“I guess you look like your father,” I told him because I think he does.  “I look like my mother,” I said.  And that’s okay with me because my mother is beautiful.  My Dad’s okay looking — for a Dad.  Sometimes he has a moustache.  Mom told him to shave it off because it made her sneeze when they kiss.  Eeeuu!  Sneezing and kissing, yuck!

“Kali,” my mom called up the stairs.  “Wayne is on the phone for you.”

“Okay.  Thanks.  I’ll get it up here,” I told her.

“Hi Wayne.  Wassup?”

“Hey.  Can you come to the train store with me today or what?  I’m looking for a certain model train engine and I think the Viking Hobby Store will have it.”

Well, I have no particular interest in model trains, so I knew I wouldn’t buy anything but I would go along with him anyway.  This is a wise decision.  After all, he is my very best friend.  Very best friends do things for each other whether we need to or like to or not.  It was Saturday morning anyway.  Cleaning my room could wait until I got back.  I was thinking, planning.

“Mom, Dad, is it okay with you if I go to the hoppy store with Wayne today?  He thinks he found the perfect train engine for his set.  He wants me to go and help him check it out.”

“I don’t mind.  Is your room picked up?” Mom asked.

“Not all the way yet, Mom,” I replied.  “I can finish when I get back.  All I have to do is fold my clothes and put them away.  A load of my socks and some t-shirts are still in the dryer.”

“Well, all right.  Did you ask your father?” Mom wanted to know.  “And don’t forget to take a snack and some juice boxes with you.”

“I know.  I already have a pack of peanut butter nabs in my sack with some water.  I don’t know where Dad is.  I thought he was in the kitchen with you.  Maybe he’s in the garage.”

“Okay,” continued my mother.  “If you don’t see your father on your way out, I’ll tell him.  If you do, please remind him that we’re going shopping today.  Oh, are you and Wayne taking your bikes or walking?”

“I think we’ll walk.”  And out the back door I went.

Chapter 2

Wayne lives four houses away from me.  I took the short-cut over to his house through a wildflower field.  I often come here to pick my mother some flowers.  I like to pick flowers for her.  There are all kinds of wildflowers in this field: yellow ones, pink ones, purple ones with yellow centers.  I don’t know the names of these flowers, I just know they are pretty and Mom likes them.

After I met Wayne on the front porch of his house, we proceeded to walk to this particular ‘train store’ as he calls it.  It is really a hobby store that has lots of other things of interest besides trains.  I’ve been in there with one of my older cousins.  She was looking for some particular, special types of paint brushes made with camel’s hair.  I thought that was cool — paint brushes made out of a camel’s hair!  There are small glider planes in this store with hand-held motor devices; there are different kinds of wood burners and wood carving tools; there are even lots of different colored rubber fish bait things — lures.  I liked those because they are shiny, squishy, and they squiggle.  Things that would attract a fish — go figure!  Wayne had been going on about a certain model train engine he saw in here a while ago.  It took him weeks and weeks to save up his allowance money to buy it.

“Hey, before we walk too far, is your insulin pump filled up?” Wayne asked.  “I hope it doesn’t beep like crazy while we are out.  I would hate to have to leave early so you could fix it.”

“Yes, it’s fine.  I filled it up with insulin yesterday morning and changed the needle site.  We are good to go!”  I planned this on purpose.  I knew he would ask.  I am diabetic.  Wayne knows.  Among many other things, I do take care of myself and my diabetes.  I have to test my blood sugar levels many times each day.  Diabetes is a disease that causes me not to digest food properly.  Because of that, I wear an insulin pump.  I used to have to take insulin shots before I got the pump.  Having the pump is much easier.  An insulin pump squirts insulin into my body, automatically, a tiny bit at a time.  A “squirt” is maybe the size of a pencil tip or the size of a period at the end of a sentence.  My parents had to give me insulin shots before I learned to give them myself.  I still keep syringes handy, in case the pump breaks down for whatever reason.  This is called having “Plan B” which is important. 

Read more of Kali’s young life with diabetes in “Me & My Money…a child’s story of diabetes.”  Available at Amazon.com.

Patch Pump

“Patch Pump: Referred to as the EoPatch, it’s a rectangular pager-sized insulin pump that adheres to the skin without the need for plastic tubing like traditional pumps use. It’s fully disposable and waterproof, lasting 72 hours on the body and holding up to 200 units of insulin.Mar 20, 2019. ” https://www.google.com/search?client=firefox-b-1-d&q=What+is+a+%22Patch+Pump%3F%22
Unfamiliar with this exact term, “Patch Pump,” my research into a tubeless type of insulin pump delivery system brought me swiftly to the designated website shown above. Once again, my medical doctors have not lead me – or even mentioned to me – that such a deivice has been available. This ad is dated 2016! WTH?!
Comparable to the OmniPod, this latest “EoPod” has been manufactured in a South Korean Company called “EoFlow.” I find it astounding. I also wonder if governmental tensions between the United Sates and the South Koreans has anything to do with the lack of marketing to appropriate diabetes care entities here in the United States.
After all, “it combines a continuous glucose monitor with an insulin patch pump to rival the tubeless OmniPod.” I like that ideal – a tubeless insulin pump WITH a glucose monitor. As the web article reads, “it rivals the tubeless OmniPod.
https://www.healthline.com/diabetesmine/eopancreas-patch-pump-and-cgm-closed-loop-system#5
Just sayin,…. #buckroth

“Senate Bill 23 – Fight Back Against High Insulin Prices”

PIKE COUNTY, Ky. (WYMT) – Every year, an estimated 27,000 people in Kentucky are diagnosed with diabetes.

More than 500,000 Kentuckians are currently living with diabetes.

“You don’t really realize how common it is,” said Sabrina Tackett.

That increasing number comes with a hefty price tag as the cost of insulin continues to increase.

“If you just saw me at Walmart, you don’t see it,” Tackett said.

Insulin is a hormone that works by lowering levels of glucose (sugar) in your blood.

Senate Bill 69, backed by a bipartisan group of lawmakers, would cap out-of-pocket costs for insulin.

Tackett was diagnosed with type one diabetes at 15-years-old.

“I have to check my blood sugar when I wake up, before breakfast, after breakfast, before lunch, and after lunch, before dinner, after dinner, and before bed,” explained Tackett.

Since her diagnosis, her life revolves around this routine.

“I have two children and if I’m out playing with them and I feel funny, I have to test again,” Tackett pointed out.

She told WYMT she knows all too well the struggles of paying for insulin.

“Between me and my parents, we have spent over $68,000 on just this one insulin,” said Tackett. “I could buy a house.”

The bill would cap insulin co-pays at $100 for a 30-day supply.

“Sometimes even when you do have good insurance, the cost of insulin could run into the hundreds of dollars a month,” Senator Phillip Wheeler said.

Wheeler is the senator for the 31st district.

“I just don’t think any working-class Kentuckian should be forced to make choices like that,” Wheeler pointed out.

It is those choices, Tackett said, she can not stomach the thought of.

“The community of type one diabetics is getting thinner and thinner because of the price,” said Tackett.

She said this bill could be life-saving.

“This bill could change the world in my eyes, you know?” said Tackett.

The bill’s lead sponsor, Republican Rep. Danny Bentley, says the price of insulin has skyrocketed by more than 550% in the last 14 years.

Tackett takes Basaglar (long-acting basal insulin used to control high blood sugar) and Apidra (an injection that contains insulin glulisine).

She needs to take 40 units of Basaglar every night. This dosage fluctuates depending on her Hemoglobin A1C. Each pen comes with 100 units inside.

“I use $316 every two and a half days,” Tackett pointed out.

The bill is supported by Kentucky Gov. Andy Beshear. The Democratic governor has urged the GOP-led legislature to “fight back” against high insulin prices by passing the measure.

The bill would apply only to commercial health insurance plans.

There is another senate bill Sen. Wheeler mentioned.

It is called Senate Bill 23.

Senate Bill 23 is a bill aimed at creating an emergency insulin fund for working-class families in Kentucky.

The idea behind the bill, which would not create an additional cost to the taxpayer, imposes a fee upon those who either manufacture or distribute insulin within the commonwealth.

Sen. Wheeler said it would create a fund so working-class families will have access to their last saving medications by permitting them to access an emergency 30 day supply at any pharmacy funded by this fee on the insulin prescriptions.

According to Sen. Wheeler, “working-class families” are people who may be in too high on an income bracket to qualify for Medicaid assistance but has either insurance policies with extremely high deductibles or are in between jobs.

Please comment on this post. Thank you. #buckroth

Denise L. Faustman, MD, PhD Harvard Medical School T1D Research Update

Updates from the Faustman Laboratory at Massachusetts General Hospital.

December 9, 2019
Dear Friends,
As another year comes to an end, it is my pleasure to share with you an update on our progress and information on some exciting new initiatives underway in the MGH Immunobiology Lab.  We are thrilled that the 150 patient Phase II clinical trial is fully funded, completely enrolled and on track to be finished in the next three and a half years.  In 2020, we hope to launch two new clinical trials:  our Expanded Access program and a pediatric trial.  The steps to initiate these studies are underway along with our efforts to raise the necessary funds.
Also, we just returned from the 4th International BCG and Autoimmunity Conference in Barcelona, which we organize every two years to bring together the global coalition of researchers testing BCG for autoimmune diseases as well as the scientists who are trying to unravel how this incredible vaccine safely impacts the immune system.  Good news about BCG is coming from all corners of the globe!  Our discussions have evolved to explore how an affordable vaccine like BCG, as an alternative to expensive devices and interventions, could have an impact in reducing the burden of rising health costs.
Attached please find a brochure that describes our progress in greater detail.  We have a lot of work to do before we can bring BCG to market with an FDA approved indication for type I diabetes.  Anything you can do to help us meet our fundraising goals and turn our full attention back to the research is appreciated.
Please follow us on Facebook and Twitter.  Here is a link to the latest news www.faustmanlab.org.
Thank you so much for your support!
With Kind regards,
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Denise L. Faustman, MD, PhD
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Faustman Lab at Mass General
Massachusetts General Hospital
Charlestown, Massachusetts 02129
diabetestrial@partners.org
617-726-4084
Faustman Lab at Mass General, Massachusetts General Hospital, Building 149, 13th Street, Room 3602 , Charlestown, MA 02129

It’s on Audible.com! It’s on Audible.com!

Yes indeed, My Diabetic Soul – An Autobiography remains available on Audible .com through ACX.Com.  My reading it to you, my voice, has been recorded through ACX to successfully and easily bring this pleasurable audio book to you – and your ears.

Here is the link: https://www.amzon.com/My-Diabetic-Soul-An-Autobiography/dp/B07JZH2MXC/ref=tmm_aud_title_0?_encoding=UTF8&qid=&sr=

It is my voice that you will hear.  Here is a snippet….

What do you think?

If you were to imagine this in a movie, whom would you choose for the characters?  There’s me as a child, my mother whom I would choose to be played by Julia Roberts; my father whom I would choose to be played by George Clooney; three sisters and a brother.  A few more are mentioned in the book as you will learn, including numerous doctors.  But how would you visualize this?

I’d love to hear from you.  Thanks! A. K. Buckroth (#buckroth)

JOSLIN 50-YEAR MEDALIST GATHERING

Yes, an astounding 50-Year celebration with the few people that have lived courageously and successfully with diabetes.  By ‘few,’ I mean approximately 6,153 since 1970.  1970.  Phew.  That’s six thousand, one hundred and fifty three individual characters in 50 years.

Absolutely awesome!

Having been a recipient of this particular medal in 2010, I am glad to report that I have lived another 10 years with diabetes.  Let me tell you…it has not been easy.  Whew.  In order for me to receive a 75-year medal, self-discipline is a nurtured core value.

Without further ado, I leave you with the latest Joslin Medalist Newsletter, Spring 2019.  Enjoy!  A. K. Buckroth   #buckroth   Amazon.com   Facebook   LinkdIn  🙂

Senate Bill 138…Singer/Song Writer Brett Michaels…

TODAY! March 27, 2019… “#KNOWSURVIVETHRIVE…KNOW the facts, SURVIVE the impact, THRIVE live the life! THIS WEDNESDAY General Richard Roth will present #Senate Bill 138 at the State Capitol. #BretMichaels will be testifying as to why #SB138 is crucial in raising awareness and #educating the public through our #California school districts. Come show your support! March 27th at 9:00 a.m. in the John L. Burton Hearing Room (4203). We hope to see you there! Please share! Thank you. – Team Bret🤘🏻#Unbroken #SingerSongwriter JDRF

Read about it here:   http://leginfo.legislature.ca.gov/fac…/billTextClient.xhtml

Appropriate to post here: 10 Things teachers should know about having a student with Type One Diabetes http://www,GetDuabetesRight.org

An insulin pump isn’t a cure

It is hard to have diabetes,even when I have an insulin pump. My blood sugars will vary every day and there is no such thing as “control” with Type 1. Please be patient while I deal with low and high blood sugars.

I wear super cool gadgets that help keep me alive.

My insulin pump and/or continuous glucose monitor may look like the latest ipod or mobile phone – some alarms even sound like a ring tone. Please don’t take them away from me – you would be putting my health in danger.

Sometimes I need to eat in class I need to keep glucose tabs and snacks in my desk (or pockets) in case of emergency.

If go low, even a trip to the nurse’s office could be too risky without immediate fast acting sugar,  I may not be brave enough to speak up for myself.

I depend on you to put my health and well being first. It’s not always easy to speak up when I’m low or high and need to take care of diabetes. It helps to know you’re looking out for my best interests.

I need immediate attention when I tell you I feel low, I may also need your help. Please give me a snack or let me check my blood sugar immediately.

Don’t leave me alone or send me to the nurse’s office by myself. My body and brain won’t be functioning properly and I could make a wrong turn or collapse in the hallway. I also cannot finish a test or complete my work until I have treated my low.

When my blood sugar is high, I use the restroom frequently.

This will not change, no matter how old I get. Please be patient when I need to take multiple restroom breaks throughout the day. This typically means my blood sugar is high and my body is reacting normally to flush extra glucose.

When my blood sugar is high, I also need to drink more to help it go down.

Please don’t call me diabetic because I am defined by WHO I am, not by diabetes.

If I’m not listening well or following instructions, I may need to check my blood sugar.

Please don’t assume that my lack of obedience or cooperation has anything to do with my attitude.

If you notice I’m not paying attention or am acting odd, gently ask me to check my blood sugar.

Thank you for being patient with interruptions in class.

Checking blood sugar multiple times a day, adjusting insulin levels and treating lows or highs can be exhausting.

Your compassion during these interruptions will help make school easier for me so that I don’t feel like a burden to you or the class.

Some days are a roller coaster of highs and lows.

Days that include low and high blood sugars happen. And when they do, I may feel terrible. It’s similar to how you feel when you have the flu or have had too much alcohol.

#buckroth  🙂

 

Travelling with Diabetes…Important Facts

Do You or Your Travel Partner Suffer From Diabetes? Here’s What You Need to Know When Traveling Domestically

Diabetes currently affects 30.3 million Americans.  That’s nearly one in ten!

The odds that either you or someone you love suffers from diabetes are alarming.  It can be a difficult disease to handle, especially along your travels.  Whether you’re a diabetic with an ambitious bucket list or you’re traveling with a diabetic who needs your care, we’ll give you the need-to-know for your upcoming domestic travels.

Just like anything else, each situation is very different and should be handled on an individual basis.  Not all of these tips will apply to everyone with diabetes.  After all, there are different types of the condition:

  • Type 1
  • Type 2
  • Gestational

Here are some tips to exercise in preparation for and during your travels on how to manage diabetes.

Your diabetes shouldn’t control your urge to travel!

Travel With Confidence as a Diabetic

With finding cheap flights, reserving the best hotels, mapping out activities, and planning finances, it’s difficult enough to construct the perfect trip WITHOUT worrying about diabetes.  Managing your diabetes or your loved one’s diabetes can make it that much more overwhelming.  A few of my family members have diabetes, and we’ve learned to construct our vacation plans around meals.

But there are ways to quiet your stress and amplify your excitement for your adventure.

Preparing for Your Trip

One cardinal step you can take to prepare for your trip is to research pharmacies in the area you plan to visit.  That way you’re not scrambling for the best options during an emergency!

Gather Documentation

It’s true that we’re living in a non-paperwork era.  But nothing can ever replace a proper doctor’s note.

This is especially applicable to seniors and children traveling alone.  However, it can’t hurt to have a conversation with your doctor about any recommendations they would give for traveling with diabetes.  You might have questions such as:

  • Any vaccines you might need
  • If you should expect any unusual effects from your upcoming activities
  • If your insulin doses should be modified

Be sure to get the doctor’s appointment well ahead of time so there is no last-minute rush.  You should also have a written prescription on your person.  If you are carrying syringes and/or insulin, it is important to carry documentation that the medication is for you specifically.

Diabetes is considered a disability, so it is always a good idea to have documentation.  And to be doubly prepared, keep in mind airport policies & accessibility options around the country.  Here is a quick sample of airport wheelchair policies & accessibility options from a few of the busier airports in the United States:

Airport Accessible Restrooms Handicap Parking Wheelchair Service
Hartsfield-Jackson Atlanta International Airport (ATL) All restroom facilities are fully equipped for wheelchair access. Four sets of “Men/Women” restrooms are located on each concourse. One set is located at either end, and two sets are centrally located on each concourse. Two sets are in the Airport’s Domestic Terminal atrium, including one set in the arrival’s lobby. Additional restrooms are located at the International Terminal, with a set on both the departure and arrival levels. Unisex family restrooms for those traveling with an attendant are located throughout the Airport: Domestic terminal arrival’s lobby (2) T2, T4, T8 and T12 A6 and A27 B9, B23 and B27 C15, C18 and C37 D4 and D32 F4, F6, F9, F12 Concourse F mezzanine level, departure level and arrival level An adult changing table is located in the family bathroom at Concourse F departure level near French Meadow Cafe. Parking for passengers with disabilities is available in all Airport parking areas. Once you enter the parking lot, just follow the signs to the designated parking spaces, which are closest to the Airport’s terminals. Passengers with disabilities are encouraged to use the Airport “Park-Ride” facility, which offers convenient service to the domestic terminal. A free, wheelchair-accessible shuttle bus will pick up passengers at their vehicle and take them to curbside check-in. Vans taller than 8 feet should park in “Park-Ride” lots. Upon returning to Hartsfield-Jackson, “Park-Ride” customers are picked up at the ground transportation area. “Park-Ride” parking rates are $1 per hour and $9 per day. For additional information, contact ABM-Lanier-Hunt 24 hours a day at (404) 530-6725. Airline representatives are available to provide wheelchair assistance. To reserve a wheelchair, contact the airline directly before your scheduled flight. Passengers with limited English proficiency should contact their airline for language assistance. Due to partial closures on the North Terminal roadways, passengers who need wheelchair assistance for drop-off between 9 p.m. and 5 a.m. should contact their airline’s wheelchair company at least five minutes before arriving at the Airport. Prime Flight (Air Canada, Alaska, American, Contour, Spirit and Turkish) – 404-530-7049 Prospect (JetBlue, Southwest and United) – 404-209-0503
John F. Kennedy International Airport (JFK) Each terminal has at least one wheelchair accessible restroom. If you need assistance locating one, just ask at the information booth located on the Arrivals Level in any of the terminals. The terminals and parking lots at JFK are divided into five areas, each specified by a separate color. For your convenience, the parking lots nearest the terminal entrances have a limited number of spaces for travelers with disabilities. To park in the spaces, official license plates issued by a municipality or state of residence must be prominently displayed. Parking fees for these vehicles are equal to the lowest rate available at the airport. Contact your airline prior to travel for wheelchairs. If you’re traveling with a motorized wheelchair, please ask the airline when you purchase the ticket about their policies regarding battery-operated wheelchairs.
Los Angeles International Airport (LAX) Each terminal has at least one wheelchair accessible restroom. All parking facilities have designated handicap parking stalls. Requesting a Wheelchair To Request wheelchair service, it is recommended you contact your airline 72 hours in advance. Wheelchair service is provide free of charge by your airline. Tipping is not required for wheelchair service. Most individuals requesting wheelchair assistance are transported via wheelchair from ticketing to their aircraft. Airlines are required to provide curbside wheelchair service when requested. On your return flight, you should remind a flight attendant near the end of your flight, that you will need a wheelchair upon arrival. Curbside Each airline is responsible for providing wheelchairs for their customers with disabilities, from curbside drop-off to the aircraft. Contact your airline’s reservation desk a minimum of 72 hours prior to your flight to reserve wheelchair service. Wheelchair service is provided free of charge. Tipping is not required. From Parking Structure Airlines are not responsible for providing wheelchair service from parking structures to terminals.
Phoenix Sky Harbor International Airport (PHX) Each terminal has at least one family restroom with a private area to change clothing or disposable undergarments. Ask for directions at any information desk. Accessible parking is available in all garages closest to the elevators. In the East Economy lot, accessible parking is available north of the PHX Sky Train Station. In the West Economy Park & Walk, accessible parking is available at the east end closest to Terminal 2. If you need extra time at the curb, Airport staff on the curb may issue Special Needs permits. Over height or oversize parking is available in the uncovered economy parking areas and Oversized Vehicle parking area east of Terminal 4. Request a wheelchair when checking in and tell a flight attendant during the flight. If you are departing, you may request a wheelchair from a Sky Cap at the curb or from a Sky Cap or the airline on the ticketing level of the terminal. You can also request wheelchair service ahead of time when you book your tickets with your airline. Ask your airline about traveling with power chair batteries.
San Francisco International Airport (SFO) Companion Care Restrooms for travelers needing companion assistance are located in all terminals, pre-security and post-security. All airport parking facilities have convenient parking for vehicles displaying a: DP (Disabled Person) license plate DV (Disabled Veteran) license plate Disabled Parking placard The Domestic Garage has standard parking at all levels. Van accessible parking is available through ParkVALET on Level 4 Departures near Terminal 1, Boarding Area C. International Garages A and G have standard and van accessible parking at all levels. In Long-Term Parking, accessible parking spaces for standard and van accessible vehicles are located on the first (ground) floor. SFO’s Long-Term Parking shuttle buses are wheelchair accessible. Travelers requiring wheelchair assistance are encouraged to advise their airline of their needs when making flight arrangements. Upon arriving at the airport, travelers with wheelchair or other special requests should approach an airline representative for assistance. At Domestic Terminals 1, 2, and 3, airline staff can be approached at curbside and check-in areas. At the International Terminal, please proceed to your airline’s assigned counter or dial 1-6210 from specially marked phones at all terminal entry doors. Arrangements for assistance to and from other locations at SFO can be made with your airline.

Contact your airline customer service for further questions and assistance while traveling with someone with diabetes.

Bring a Schedule

As you are traveling, be sure to consider time zones.

Because we are all prone to some level of jet lag, this can significantly affect daily routines, including eating and time of insulin injections.  If you don’t establish a schedule, your travels can be railroaded quickly with the potential fluctuation of blood sugar levels.

Jet lag can foil your idea of a good time – especially if your rigid schedule as a diabetic is compromised

Pack Healthy Snacks

It’s vital to carry healthy snacks in case you or your travel buddy are running on low blood sugar.  We all practice irregular eating habits while we travel, whether it be indulging in unhealthy food, drinking more than normal, or not getting enough water.

Eating out at a diabetes-friendly establishment isn’t always cheap, so bring and use your favorite restaurant rewards card to get the best bang for your buck for food.  It’s a nice way to get a return for money you’d spend anyway.

You can also take control of your diet by packing your own food, including items you know are diabetes friendly, like:

  • Cheese and crackers
  • Apples and peanut butter
  • Hard boiled eggs
  • Trail mix
  • Beef sticks
  • Dried fruit
  • Yogurt

It’s good to mix a few non-perishables in there to ensure you’ve ALWAYS got sustenance in your back pocket.  This can be the difference between an enjoyable adventure or an unfortunate trip to the hospital.

Hitting the Road

Just as you go to the doctor’s for a check-up prior to a vacation, take your car for a check-up, too!

If you are planning to head out for a road trip, be sure to take your vehicle in for an inspection at least a week before you hit the highway.  If there’s something wrong with your vehicle, you are giving yourself a few buffer days between a potential problem and your vacation.

However, do consider renting a car.  Sometimes it makes sense to pay for a rental car and put the miles on a vehicle that’s not your own.  And if you do decide to rent a car, be sure to explore all of your options when it comes to using rewards cards for car rentals.  Along with that, be sure to use cards that will give you the biggest return on gas purchases.

If you’ve got room, consider bringing extra medical supplies and snacks.  If you’re making a long drive through parts of the country where medical access isn’t readily available, you’re obviously going to want as many fallback solutions as you can get.  Bring enough food to account for low blood sugar, and pack a cooler for insulin in case you are traveling through high temperatures (not directly on ice, though!).

Lastly, driving can be extremely tiring.  Whether you are driving or not, being cooped up a car for hours on end is taxing.  Taking frequent breaks will allow everyone to stretch to keep blood flow moving and prevent fatigue.

Traveling by Air

While traveling by air is a bit more luxurious, it can still be hard on your body.

Notify the Proper People

If you decide that flying is your best mode of travel, be sure to let the appropriate people know (for example, your flight attendant while you’re boarding the plane).  That way they’ll understand when you press the call button and request a cup of juice to stave off hypoglycemia.

This is particularly wise if you’re traveling alone.

In the same vein, you can even use a TSA notification card that will make your airport security process a little less of a headache.

Store Your Medication in Your Carry-On Bag

Also, consider bringing medical necessities in your carry-on bag instead of putting them into your checked bag.  Do this for a few reasons:

  • You always want access to your medication.  If you end up stuck on the plane longer than you anticipated, or if onboard meals are delayed for some reason, it could lead to a bad situation if your supplies are in your checked bag
  • You don’t want to subject your insulin to frigid temperatures in the cargo hold
  • Checked bags get lost, misdirected, stolen, etc.

In fact, because airlines allow you 1 personal item (separate from your carry-on), you may want to bring a dedicated diabetes pouch filled with snacks, insulin, and tablets.

Personal items are considerably smaller than carry-on bags, but you can still cram plenty of necessities in there!

And don’t scrimp on the amount of snacks and medicine – bring WAY more than you imagine you’ll need!  Remember, diabetics don’t have to abide by the 3.4-ounces-of-liquids rule like everyone else when going through airport security.

Use Airport Lounges to Stay Comfortable

To keep your comfort levels up, consider entering airport lounges to rest up and have access to snacks and drinks before your flight.  This is my all-time favorite travel accessory.

Airport lounge access isn’t as expensive as you might imagine, especially if you have the right credit card!  If you are anticipating a long flight, it could make a world of difference.  Many lounges have hot meals, free beverages, high-speed Wi-Fi, private bathrooms, and even showers!

Bottom Line

Just like anything else in life, preparation is key to ensure a smooth and enjoyable experience.  If you or someone you are traveling with is diabetic, taking steps ahead of time could save you from a potentially health-threatening situation.

Diabetes shouldn’t stop you from seeing the world!  See: www.diabetesforecast.org for details.

 

Something You Need to Know: 24 Hour Insulin vs Fast-Acting Insulin

The last 25 years of my life, I have had to use a BASAL/24 Hour Long Acting Insulin along with a before Meal-Time/Fast Acting Insulin.  This is most, but not inherently, due to wearing an insulin pump.

The 35 years before that, I used syringes twice a day.  I am dependent on insulin.  I am an insulin addict.

The following guide and charts will be of good use to you, the T1D and or T2Ds in need of insulin.

Please use this with your doctor(s).

 

Skyrocketing Insulin Prices by Ashley Klann

Posted on facebook February 15, 2019, “Judge Denies Insulin Makers’ Motion to Dismiss Class-Action Lawsuit Regarding Skyrocketing Insulin Prices,” this article is definitely worthy here at Buckroth’s Blog.

“Attorney representing individuals living with diabetes against the pharma defendants says judge’s opinion “blows the insulin racket wide open” to expose deals with PBMs.”

“NEWARK, N.J. Today, a federal judge’s opinion has greenlighted a national class-action lawsuit filed against Sanofi, Novo Nordisk and Eli Lilly for their systematic overpricing of insulin and concealment of a behind-the-scenes arrangement orchestrated to hike insulin prices, according to attorneys at Hagens Berman.

“Hon. Brian R. Martinotti, U.S. District Judge for the District of New Jersey granted in part and denied in part the drug companies’ motion to dismiss the case. The opinion allows state law claims from plaintiffs – people living with diabetes who Eli Lilly, Sanofi and Novo Nordisk have forced to pay skyrocketing insulin prices – and gave attorneys representing them ability to address concerns regarding individual state representation. To the extent the court requires a patient from each state, attorneys say they can and will add clients to satisfy the court’s concerns.

F”ind out more about the lawsuit and sign up.

Regarding the plaintiffs’ state claims, Judge Martinotti’s opinion read, “This Court finds Plaintiffs have adequately alleged fraudulent, unfair, or unconscionable conduct.” The court also held that the plaintiffs “adequately pled an ascertainable loss.”

“The lawsuit states that in recent years, Sanofi, Novo Nordisk and Eli Lilly have raised the sticker or “benchmark” prices on their drugs by more than 150 percent. Some plaintiffs now pay almost $900 dollars per month just to obtain the drugs they need, according to the firm.

“Hagens Berman filed the first-of-its-kind lawsuit in 2017, detailing several accounts from patients resorting to extreme measures to survive rising insulin prices, including starving themselves to control their blood sugars, under-dosing their insulin, and taking expired insulin. The complaint also detailed how class members having intentionally allowed themselves to slip into diabetic ketoacidosis – a potentially fatal blood syndrome caused by lack of insulin in the body – so that they can obtain insulin samples from hospital emergency rooms.

“Steve Berman, managing partner and co-founder of Hagens Berman, was named co-lead counsel in the case by Judge Martinotti.

“In general we are pleased with the decision because we can now bring consumer protection claims in most states,” Berman said. “This ruling also clears the way for us to begin obtaining discovery from the manufacturers and PBMs so we can shine the light on exactly what has driven insulin prices sky high.”

“This ruling blows the insulin racket wide open,” he added.

“The complaint states that this once affordable drug is now out of reach for many patients due to a behind-the-scenes quid pro quo arrangement between drug makers and pharmacy benefit managers (PBMs): “increased benchmark prices are the result of a scheme and enterprise among each defendant and several bulk drug distributors. In this scheme, the defendant drug companies set two different prices for their insulin treatments: a publicly-reported, benchmark price and a lower, real price that they offer to certain bulk drug distributors.”

“Are you Affected? Sign up for the Case Now.

  • Attorneys are currently looking for those who purchased Lantus, Levemir, Novolog, Humalog Apidra, and/or Toujeo from the following states: Alaska, Alabama, Connecticut, Delaware, Hawaii, New Hampshire, North Carolina, North Dakota, Oklahoma, Rhode Island, South Carolina, South Dakota, Virginia, West Virginia or Wyoming. Sign up here.
  • Did you purchase Humalog in Arkansas, Illinois, Kentucky, Mississippi, New Mexico, Oregon, Tennessee or Vermont? Sign up here.
  • Did you purchase Novolog or Levemir in Colorado, Montana, Nevada, or Washington? Sign up here.
  • Did you purchase Lantus, Apidra or Toujeo in Louisiana, Maine, Mississippi, Tennessee or Washington? Sign up here.

About Hagens Berman Hagens Berman Sobol Shapiro LLP is a consumer-rights class-action law firm with 10 offices across the country. The firm’s tenacious drive for plaintiffs’ rights has earned it numerous national accolades, awards and titles of “Most Feared Plaintiff’s Firm,” and MVPs and Trailblazers of class-action law. More about the law firm and its successes can be found at www.hbsslaw.com. Follow the firm for updates and news at @ClassActionLaw.”

Media Contact: Ashley Klann, ashleyk@hbsslaw.com, 206-268-9363